Fittingly born on Valentine’s Day in 2013, Tessa Evans, the girl who was bornwithout a nose, is showered with love and praise each day by her family and people across the globe.
Tessa, whose condition is so rare that there are fewer than 100 cases worldwide, is praised by her mother for her “charming” personality and “infallible courage.”
Eight years since she became the first human to get nasal implants, Tessa is powering through and living her best life, refusing to let her condition stop her “from doing anything.”
After a normal pregnancy with no signs of any abnormalities, Grainne and Nathan Evans were shocked to see their Valentine’s Day newborn was born without a nose.
Tessa, from Maghera, Ireland, has Bosma arhinia microphthalmia syndrome (BAMS), meaning she was born without a nose. According to the National Institutes of Health, the condition is so rare that there are fewer than 100 cases reported in medical history.
And because the condition is so rare, it’s not an easy fix.
For Tessa, it means she has no sense of smell and no sinuses, but she can still cough, sneeze and catch a cold.
“It was funny the very first time she sneezed, but we actually found out that it actually comes from your chest,” said her dad, Nathan. “However, having that wee bit of normality was quite nice.”
The first few weeks of Tessa’s life were difficult. She spent five weeks in intensive care, and when she was less than two weeks old, she had surgery to create a second airway with a tracheostomy tube, allowing her to eat and sleep properly.
When Tessa was only two, she became the first ever person to have a cosmetic nasal implant fitted to help create the missing appendage.
Normally, people who need a nasal prosthesis have the procedure done when they are a teenager, when the face has stopped growing.
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